Rylee's Road

Rylee lives with an ultra-rare neurodevelopmental genetic disorder FBXO11. This condition affects how her brain processes and clears proteins, impacting nearly every aspect of her development and daily functioning.  Because FBXO11 is so rare, there is very little information about what her future holds or what milestones she may or may not achieve.  When she was diagnosed, there were only 84 known cases worldwide.